NHS Nottingham and Nottinghamshire ICB has developed and launched a new website offering support and advice to neurodivergent people of all ages, to help them with navigating a range of health systems and services across the region.
Minds of All Kinds works as a central hub for neurodivergent people, offering them a “safe space online” where they can “find help and information about Autism and ADHD” as well as local service directories and referral pathways. Users can find tailored and practical advice on a range of different categories, including health, education, sensory needs, adulthood, social care systems and more, while also having access to to personal stories from young people and their families.
The website was produced by the ICB in collaboration with healthcare professionals, local stakeholders and the adults, young people and their families with “lived experiences” in this area, giving people access to “trustworthy information and guidance”, so that they can find the right support pathway.
“We’re proud to launch Minds of All Kinds as a dedicated space that recognises and celebrates neurodiversity,” Rosa Waddingham, chief nurse at NHS Nottingham and Nottinghamshire, said. “We have created this site following feedback from families who wanted information before deciding to get a formal diagnosis or while they await results of an assessment. Minds of All Kinds is about empowering young people and their families with the tools and knowledge they need to thrive.”
Earlier this month, Interweave announced that GPRCC (General Practice Repository for Clinical Care) and eHealthscope data went live in the Nottingham and Nottinghamshire shared care record, taking them one step closer to completing the first phase of data development. As a result, multiple community services can now access end-of-life coded data and 10 million conditions/diagnoses from EMIS and SystmOne.
Using digital to support ADHD care across healthcare
A recent report from the independent ADHD Taskforce was commissioned by NHS England to better understand the challenges affecting those with ADHD and make recommendations for change. It identified several areas that “could benefit from harnessing technology”, suggesting that the DHSC should prioritise the digitalisation of ADHD services to help speed up routine administrative tasks, help manage waiting lists and improve efficiencies.
Last month, we shared a feature on supporting the NHS to reduce ADHD backlogs and improve access, looking at how ADHD Select can provide NHS organisations with a clinically governed, technology-enabled model to help address one of the most pressing challenges in neurodevelopmental care.
NHS England published an ADHD data improvement plan in May, which outlined a roadmap focusing on planned actions to improve data quality and introduce regular reporting. It highlighted the importance of accurate data in helping understand the patient experience, enable service improvements and support work on tackling health inequalities.